Rene and Luis got to go to a Giant's game and watch it from the Michael Buble suite (Thanks to Michael Buble and the Ronald McDonald House). They had a great time and even met Michael and his father. Luis got to speak to him in Spanish. How cool is that?
I missed it because I was working remotely from my beautiful window-side location at the Ronald McDonald House. I hate missing all the fun, but it is better than being back in Victoria by myself. I can't quite seem to get my full 30 hours in each week, but my bosses are being very flexible, thank goodness, because I can only do so much. I try to be kind and available to Rene when he comes in, even though it keeps me from working a bit.
Today he came in and told me he met the Giants and played Jenga and air hockey with them!!! He enjoyed that they took the time to actually play with him. #7 signed his colouring sheet he did and #10 played air hockey. Rene was GLOWING when he came into our room at RMH.
Rene's eye is looking better and better. After the first round of chemo it went half way back into it's socket and just today, after a second round of chemo, I noticed that it's almost all of the way back into its socket. There is just over a week's worth of radiation to do, so we'll be in Victoria soon.
I wanted to thank you all for continuing to check the blog, post your lovely comments, and I see that some of you have even donated money. That is so kind of you! We're doing ok, since we had some money left over from the big fundraiser last year (we were only letting ourselves spend it on extra fun for Rene and saving it for times like these) but it is a relief to know I don't have to put pressure on myself to work all 30 hours a week. Luis wishes he could work, but he just can't. 7.5 hours a day is so long! I can never get that many in here at RMH! How do I do it during "normal" life? How did I ever do 37.5? I have no idea. Some days I'm just weepy, or grumpy, or both. Luckily, I've mostly gotten into it and have been able to concentrate better and better over time.
Neuroblastoma is THE WORST thing ever. Please consider donating for neuroblastoma research instead of to us.
In fact, the Handbags for Hope event is this weekend. Go Lisa and the Team 4 Hope!!!!
Rene has already had this chemo he's taking in previous treatments and my stomach hurts at the idea that his disease could get resistant to it. It also hurts at the idea that he's having radiation to his head!!!! This time there should be no damage to his brain because it is low enough doses, but this is too close for comfort.