Rene and Luis came home with a huge cardboard robot/box two days ago. As we all know, cardboard boxes are the best toys. Last night Rene laid it on its side and called it his "hotel." He put a pillow in there and invited me to "stay the night." I scooted in, and he got his Tag Reader and matching books so he could read to me. The tag reader can read in the near-dark of a cardboard box. Who would have known! It was dark enough, Rene had to scoot outside of the box to see which book he had in his hands, then scoot back into the box to read to me with it.
Rene and Luis reported to the Oncology Clinic at Victoria General Monday morning for another round of chemo. Rene is handling it just fine as usual and can even eat his breakfast, though he does need to take an antiemetic.
The child life specialist there is doing a great job of keeping Rene's time on the electronics to a minimum. Rene was cycling to out-of-control electronics play-time (again) and Luis had cut him off on Saturday (again) -- which was not a smooth transition, but it never is. Yesterday he came home with a hand made card to Luis and I and is reportedly making a life-sized cardboard robot that I'm hoping someone will take a picture of (hint, hint Luis).
Purchase a $5 button and wear your jeans to work on Thursday April 26!
Money raised from Jeans Day directly benefits the BC Children's Hospital: helping them to provide the essential services, research and advanced technology necessary to make leading paediatric care accessible to the province's one million children.
At 800 Johnson (and other places) people are buying their buttons already. I'm so glad we are supporting the BCCH as a community because many families from all over BC end up there once or twice in the course of rasing their children. The hospital saves lives and does so in a child and family centered way. It's a long trip for many famil
We're so pleased! Rene's scans this week were negative. We can continue to do chemo because it's working. I'm so relieved.
Rene is in the tub pretending to shave with a toy shaving kit he got from the Ronald McDonald House. It even has a can of real shaving cream.
Chemo starts on Monday so he'll miss school next week, but he got to go today and even got to have a play date at a friend's house!
We want to thank the Independent Order of Odd Fellows (http://www.ioofbc.org/who-we-are/programs/) for bringing our family a donation. One of the members checked our blog and saw that Rene had had a relapse. The lodge agreed to give a donation to our family and we are really grateful.
He told us about the Rink of Dreams fundraiser (http://www.vicnews.com/sports/144979665.html) that was to begin March 31. We were very excited to go, but then Rene's blood tests came back showing very few white blood cells (he was neutropenic). That meant that he didn't have enough immunity to keep him safe in public, so we had to have a quiet weekend at home.
For Easter Rene's counts had just gotten up enough to go into public. He got to go to school for a day and a half before the Easter holiday, then we were able to travel to be with family. It was our first Easter without Rene's grandma and we managed to have fun -- mostly because Rene was having a blast playing outside and preparing for the Easter egg hunt of the century with the 200 plastic eggs and various kilos of candy my father had purchased.
Grandpa hosted Easters are different than Grandma hosted ones. The food is still great and there are still great family friends. The differences: Rene got to play with a bow and arrow, there was a fire pit and since there were no marshmallows, we roasted marshmallow "peeps." Peeps taste better roasted than raw. I'm sure mom would have agreed.
We went to a church service with my sister's in-laws and saw Rene's name on the prayer list. I'm glad my brother-in-law's mom keeps him on the prayer list! She's got it covered. I've been meaning for months to write and request it. No wonder I kept forgetting, it was already done.
I brought home some of my mom's clothes that fit and Rene said they smelled good. I was surprised that he remembered after half a year, but he did. Then he commented, "Grandma smells better than Grandpa." (Sorry Dad, I'm always looking for a chuckle.)
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