Make a Wish BC and Yukon granted Rene's Wish to go to Disney World. He got to stay at the wonderful Give Kids the World Village where we had a spacious, comfortable villa, free buffet meals, private character photo meetings, an interactive water play area, ice cream all day every day, kind volunteers to spoil us, and magical treats. Rene had so much fun it was impossible to get him to bed before 10:00 pm!
Give Kids the World
Day 1: Universal Studios Islands of Adventure
Day 2: Disney's Magic Kingdom
Day 3: Disney Animal Kingdom
Day 4: Universal Studios
Day 5: Sea World
After feeding and touching the dolphins I was in bliss and ready to float home to Give Kids the World.
Day 6: Hollywood Studios
Day 7: Bonus Play in the Pool and Fly Home
Monday Magazine is proud to be the host of this fundraiser, supporting Tour de Rock rider Kyle Slavin, at Club 9ONE9. A local brewery has agreed to donate 50¢ for every beer sold to the Tour de Rock. So come on out for a cold beer, some laughs and a chance to meet a Tour de Rock rider. Doors open at 6:30pm with the show starting at 7:30pm.
We're looking forward to our trip.
AND Luis figured out how to tweak Rene's chemo schedule so he can go camping without the encephalon in (and the doctors and nurses are flexible enough to make it happen). Rene'll do his treatment on Wednesday, Thursday, and Friday. He won't need his first shot of G-CSF until Tuesday so he'll go get his encephalon on Tuesday morning and he can camp with a normal body!
Ever since May it'd been bugging me that I hadn't made any camping reservations for the summer. It's just not summer if you don't go camping at least twice! Rene's been asking to go camping and Luis and I like it, but we were just so swamped, I had no idea how to pick the right weekends.
Finally, I just decided to use the 3-day weekend criteria. This criteria is simple: make reservations on the remaining two 3-day weekends of the summer. Luis and I chose Sooke Potholes because it's close and I decided to go for August on this one because the weather ought to be good for swimming.
I got the reservations made and we'd started getting excited for our mini-vacation at Sooke. Then last night Luis told me that Rene's next round of chemo is scheduled for the Monday after we return from Disney World. I noted it on the calendar with an internal sigh. Rene'll be back to the grind 48 hours after one of the biggest events of his life.
About thirty minutes later it clicked in Luis's head. Right after chemo Rene get's a small plastic tube poked into his thigh, which is connected to a solid plastic mouth into which we give him injections of the famous G-CSF to boost his immunity. ...and that means that he'll be wearing that device while we're camping. ...and that means that he can't get very wet. (To shower, we cover it with press-'n-seal and limit the amount of water we put on his body.) Press-'n-seal ain't gonna cut it at Sooke Potholes.
We looked at each other. We both ran through the options in our heads: postpone to a 2-day weekend? Nope. Switch the Sooke trip to September? Nope.
Luis put it into words, "Let's just leave it like that. Otherwise the whole summer goes by and we don't get camping."
Rene's not a swimmer anyways.
If I pack the opening of the plastic tube with hydrophobic triple antibiotic it'll probably buy some extra insurance. Shhhh. Don't tell the doctor and nurses.
We'll have to pack extra ice to keep the G-CSF cold, but it's not like we won't be 20 minutes from a store in Sooke.
The people at Make a Wish sent Rene a big box of toys and activities for his trip to Disney World!
Rene finished a short 3-day cycle of chemo at the small clinic in Vic General. The doctor decided to shorten it to be sure his counts won't be too low for his trip to Disney World at the end of the month. He's gotten nauseous, but his anti-emetic has made short work of the problem. It looks like he's going to get one day of fun at summer camp tomorrow. Yay!
Today the wonderful people from Make a Wish Foundation sent us our itinerary for Rene's trip to Disney World! We'll be going during the last week of July. When we turned the page in the calendar to July, Rene counted the days until we go. He's put three star stickers on that day so it's easy to find.
Today I went to the post office to pick up a package. I had no idea what it might be, and it turned out to be related to Rene's cancer experience as well. A while ago I agreed that our family would participate in a Neuroblastoma research project. The package was heavy and I felt it pulling down on my arm as I carried it back to our home. I didn't open it tonight, but I will soon. So few children are diagnosed with Neuroblastoma every year that research progresses slowly. I feel that it's very important to do our part to help researchers learn everything they possibly can about the disease.
Meanwhile, we had fun thinking about our upcoming trip!
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