- Rene started radiation last week to treat the new tumor on his pelvis.
- Rene also has some diffuse disease in the rest of his pelvis and in his lower spine.
- Luis is caring for him in Vancouver while I work in Victoria
- Rene is just as spunky and energetic as ever. There is no way to tell he has cancer without putting him into a machine and scanning him.
- Rene got a VAD (venous access device) surgically implanted in his chest today.
- Rene also did his radiation treatment today
- Radiation is every morning for 20 working days
- He lays in the machine for about 10 minutes, I guess (what do I know, I'm working?)
- Rene is now able to lay still so he does not have to be sedated daily, like he did the other time he did radiation
- Chemotherapy starts this month in Vancouver
- Chemotherapy will be given as a low dose as an outpatient in Victoria
- The doctor wants to keep Rene in school during the majority of his chemotherapy
- There is "some" hope that Rene can still be cured
- Neuroblastoma is unpredictable and there is no way of knowing if this will work
- I am terrified, but working hard to keep a positive attitude.
- Rene's grandma passed away last month. He misses, her but has the advantage of being only 5. He's not dwelling on it.
This blog post won't be well written, but I wanted to get some information out about what is going on. Here are the details in list form:
Rene has some recurring, sporadic pain in his groin and was sent in for a PET CT scan. A tiny tumour was found on his right pelvis.
This tumour was the only one seen in his body and can be destroyed with radiation. We don't know if the doctor will recommend any additional treatment or if the radiation will be enough. It's good that there is only the one tumour, but there is no way of knowing if others might now form.
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